• Rare Bone Disease Workshop

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    National Bone Health Alliance/Rare Bone Disease Patient Network Workshop: Mechanistic and Therapeutic Insights into Skeletal Biology Learned from the Study of Rare Bone Diseases

    Thursday, September 11th, 2014 (One day prior to the ASBMR 2014 Annual Meeting)

    George R. Brown Convention Center, Houston Texas, USA
    Grand Ballroom C

    To date, nearly 500 unique rare bone diseases have been described, which in the aggregate affect 1 in 5,000 live births, and comprise 5% of all birth defects. Typically the disability caused by these diseases affects individuals throughout their lives. Currently, the vast majority of these disorders have no cure, yet studying rare bone diseases has helped elucidate biological pathways and reveal valuable targets for drug discovery that are benefitting patients with common bone diseases too.

    Coordinated by the National Bone Health Alliance (NBHA) in partnership with the Rare Bone Disease Patient Network and with the support of the American Society for Bone and Mineral Research (ASBMR) and the United States Bone and Joint Initiative (USBJI),  the one-day workshop will include lectures by invited speakers, and multiple opportunities to initiate collaborations and encourage future research partnerships.

    Download the Workshop Agenda 
    Download the Poster Presentation Instructions

    This event is supported by unrestricted educational grants from:

    Click here to view the members of the NBHA Rare Bone Disease Working Group and Rare Bone Disease Patient Network.

    Questions? Please contact Taylor Wallace at +1 (202) 721-6363 or taylor.wallace@nbha.org