“The Genome and Privacy” – Joe Lorenzo’s Latest Blog
Date: August 13, 2013
In his latest blog entry, Dr. Joe Lorenzo discusses the ethical implications of using individuals’ cells in genomic research. Henrietta Lacks, a woman whose cervical cancer cells were used to complete the sequence of HeLa cells, never gave consent for the use of her cells in research. Further, her family never knew her cells were maintained in culture 22 years after her death, never received profits from the discoveries, and had “no influence over how the cells were used or the process involved in accessing their genetic information.” Read more to learn how the National Institutes of Health has addressed these issues and what they could mean for the future of genomic research.